Light disease EPP: Treatment of a genetic defect
Erythropoietic protoporphyria – EPP – is an extremely rare disease. The so-called light disease is triggered by a genetic defect and, in most cases, transferred to following generations. In Germany approximately 400 patients are affected, although the number of unreported cases is much higher. When the patients are exposed to sunlight for too long a period they suffer painful burns. Even artificial light sources can cause symptoms. As a healthy person you can hardly imagine the restrictions and agonies they are exposed to.
An interview with Dr. Esther Wißmüller
René Jacobs of “Akademie der Bayerischen Presse” had an interview with someone who suffers from EPP. In addition to that, he talked with Dr. Esther Wißmüller of “Dermatologie am Sendlinger Tor” in Munich about treatment methods and chances for recovery. Read René Jacobs: When the sun becomes your enemy. If you suffer from EPP yourself or if you know someone who is in this predicament, please, contact us. We can help along as we work together with recognized therapy centres.
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